PDF Download The FibroManual: A Complete Fibromyalgia Treatment Guide for You and Your Doctor, by Ginevra Liptan
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The FibroManual: A Complete Fibromyalgia Treatment Guide for You and Your Doctor, by Ginevra Liptan
PDF Download The FibroManual: A Complete Fibromyalgia Treatment Guide for You and Your Doctor, by Ginevra Liptan
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About the Author
Ginevra Liptan, M.D., is a graduate of Tufts University School of Medicine, board certified in internal medicine and trained in functional medicine, a holistic approach that blends both Western and alternative medicine. After developing fibromyalgia as a medical student, Dr. Liptan spent many years using herself as a guinea pig to find successful treatments, and she has fine-tuned her approach by treating thousands of patients. She is one of the few clinical specialists in the world to focus solely on fibromyalgia. She directs the Frida Center for Fibromyalgia and serves as medical advisor to the Fibromyalgia Information Foundation.
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Excerpt. © Reprinted by permission. All rights reserved.
9781101967201|excerptLiptan / THE FIBROMANUALChapter 1Figuring Out Fibromyalgia for MyselfAt the end of my first year of medical school, I was doing crunches at the gym when I felt a muscle in the front of my neck rip, causing intense pain. I had injured muscles before, and I figured it would heal quickly. But as days turned to weeks, it didn’t. My neck burned constantly and felt like it could no longer hold up the weight of my head. The only relief I got was when I wrapped a heating pad around it. A chiropractor found mild abnormalities in my cervical spine and made some adjustments. I started getting regular chiropractic treatments, because they were all I could think to do, and they helped a little.That summer, I was achy and tired all the time. I took a part-time babysitting job, and working for just a few hours left me exhausted for days. I woke up in the morning with a sore neck and back, which hurt all day. I frequently felt stiff, weak, and lightheaded. It was as if all the energy of my body and mind had been sucked out. I went to see my primary care doctor, who prescribed a muscle relaxant, which did not help. The pain progressed to my upper back—an ache between my shoulder blades that would not go away. My spine hurt, my skin hurt, everything hurt. I was sleeping poorly, tossing and turning, and I woke every morning feeling more tired than before I went to bed. I felt too weak to even lift my arms to wash my hair in the shower.One day my hips started aching so much that I couldn’t do anything but lie in bed and cry. I was sure there was something really wrong with me, so I went again to my doctor. She drew blood and sent me to a rheumatologist. The rheumatologist ordered X-rays of my neck and hips and assured me they were completely normal.“So why do I hurt all the time?” I asked.“I don’t know, but you don’t have arthritis,” he responded.I returned to my doctor to find that my labs were all normal. My doctors had no answers for me and nothing to offer.A DiagnosisI started my second year of medical school as a total wreck. And then a bit of grace fell my way. My chiropractor sold her practice. I tearfully told my entire story to the chiropractor who took it over, and he suggested that I might have fibromyalgia—the first time anyone had even mentioned it to me. He checked my tender points, and registered “exquisite” tenderness in at least twelve of them, confirming the diagnosis. He recommended that I pick up what he called “the bible of fibromyalgia,” Fibromyalgia and Chronic Myofascial Pain Syndrome: A Survival Manual, by Devin Starlanyl and Mary Ellen Copeland. I spent weeks reading and rereading it, trying to convince myself that I did not have the condition, but unable to avoid the fact that it described me perfectly. “Chronic” was such an awful word. And fibromyalgia had such a stigma among doctors—even among my fellow medical students—that I couldn’t quite believe I had it.I began doing research in my medical textbooks, on the Internet, and in bookstores. I quickly became discouraged. Western medicine had little to offer beyond antidepressants and exercise. I was already on antidepressants, and exercise made me feel worse. So I ventured into the confusing world of alternative medicine, perusing countless theories and treatments online, many of which conflicted directly with what I was learning in school. I was overwhelmed by the different ideas I encountered about the causes of fibromyalgia and how to treat it.Was it yeast overgrowth? Low thyroid hormone production? Did I need to cleanse my body of toxins? Do a raw-juice fast? Use guaifenesin to reduce calcium phosphate deposits in the muscles? Was I deficient in some vitamin that I needed in megadoses? Did I need a macrobiotic diet? Raw foods? Alkaline foods?Compounding my frustration was the fact that I was so fatigued I didn’t have the energy to contemplate major lifestyle or dietary changes. Acupuncture didn’t help, and massage made me feel more achy and tired. The latter half of my second year of medical school was basically a very expensive correspondence course. I rarely felt well enough to make it to class, and survived by getting lecture notes from friends, studying at home, and showing up only for the occasional required seminar and exams.I finally accepted that I had fibromyalgia. I felt hopeless and helpless. I told myself that it wasn’t fatal—it wasn’t cancer—but it still felt like a death sentence. It became clear that there was no way I could make it through the rigors of the third year of medical school, with its eighty-hour workweeks and high levels of physical and emotional stress. I took a leave of absence.Stumbling into HelpDuring my yearlong leave I read every book I could get my hands on about fibromyalgia and tried every treatment I could. I knew exercise was supposed to help, so I kept trying new regimens, only to stop after injuring myself. After diligently following the guaifenesin protocol described in What Your Doctor May Not Tell You About Fibromyalgia: The Revolutionary Treatment That Can Reverse the Disease, by R. Paul St. Amand and Claudi Craig Marek, I was devastated when I got no benefit from it. I took thousands of dollars’ worth of useless supplements. I tried IV therapies with a naturopath, and saw a top holistic MD in Boston. I did colonic hydrotherapy and fasted and did detoxifying diets. I tried every type of massage I could find, but each session seemed to make my pain worse. I journaled and saw a therapist and tried to meditate. None of it helped, and midway through the year I was feeling hopeless and preparing to drop out of school completely.Then I read Claire Musickant’s Fibromyalgia: My Journey to Wellness. Musickant describes her dramatic reduction in symptoms after testing for food sensitivities and eliminating the offenders. I knew it was something I needed to do; it felt right. I had a rare rush of hope and excitement as I called the lab to find a practitioner in my area, a naturopath. She told me the test was expensive. I hesitated and asked her if she had found that it helped people with fibromyalgia. “Oh, yes,” she said, “and it helped me. I had fibromyalgia and am now ninety percent better.” She had fibromyalgia—past tense. These were possibly the most beautiful words I had ever heard. She was the first person I had talked to who had even suggested that fibromyalgia was something one could recover from.I did the blood test and started to avoid the recommended foods and chemicals. After about two weeks, I realized that the all-over body ache I had grown so accustomed to was gone. Now it only hurt when someone actually pressed on my muscles. It didn’t feel as if I constantly had the flu. I had the energy to grocery shop, to cook, to exercise. I was thrilled. But my sleep was still light and restless and I woke up exhausted every morning. My neck and arm pain flared up easily with exertion or repeated motion.A massage therapist recommended I try a manual therapy technique, the John F. Barnes’ Myofascial Release Approach, which involves slow, prolonged stretching that releases restrictions in the fascia, the connective tissue around the muscle (see chapter 12 for further details). After several sessions I experienced dramatic pain reduction in my arms and neck. With ongoing myofascial release therapy, I felt well enough to return to medical school, but I remained fatigued all the time. Things really fell apart during a month of night shifts in the hospital. I couldn’t sleep during the day and developed severe insomnia. I dragged myself once again to my primary doctor, who prescribed a sleep medication.Suddenly everything shifted. I was getting deeper sleep and feeling more rested when I woke up. The combination of improving sleep quality with medication, avoiding inflammation-producing foods, and myofascial release treatments got me through the grueling remainder of medical school and residency training. And it forms the core of my treatment approach to this day. Over the years I fine-tuned my technique, learning other ways to improve deep sleep, treat the fascia, and warm up so that exercise helps and doesn’t hurt.As I continued my medical training, I was able to better assess the thousands of studies and articles written about fibromyalgia. I began to put together why certain treatments had helped me so much, while others did nothing at all. Based on my own relief with myofascial release I was convinced that the fascia was the source of fibromyalgia pain, and my research has focused on it ever since. At Oregon Health and Science University I conducted a study that found myofascial release therapy was more helpful than standard massage for fibromyalgia symptoms (Liptan 2013). I’ve also published articles on exercise and self-management strategies (Jones 2012; Liptan 2010; Jones 2009). In 2011 I founded the first private practice in the United States dedicated exclusively to fibromyalgia, the Frida Center for Fibromyalgia, in Lake Oswego, Oregon.For years after my diagnosis I felt bitter toward all the doctors who had not been able to help me. It was so frustrating that again and again I had to find my own way, wasting money on ineffective treatments because I had no guidance. My resentment faded, though, as I continued my medical training and practice and realized that physicians in this country are working within an untenable system. Our current medical framework is just not set up well to deal with chronic and complex illnesses like fibromyalgia. And while most doctors do really try to help their fibromyalgia patients, they simply lack the expertise or tools to do it.I told no one about my diagnosis, even my closest friends. I only revealed it during my final presentation to colleagues and teachers on the last day of my residency. I felt as if I was “coming out” and revealing a whole secret life. I wanted to show my fellow doctors it is a real disease that can happen to anyone. Since then, I have focused a large part of my career on educating other health care professionals about this invisible illness. I am done feeling ashamed. My hypervigilant nervous system keeps me attuned to subtle changes in other people’s emotional states and in my environment. It has helped me to become a better doctor. And my intimate experiences with pain and suffering have made me a better human being.
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Product details
Paperback: 384 pages
Publisher: Ballantine Books (May 3, 2016)
Language: English
ISBN-10: 110196720X
ISBN-13: 978-1101967201
Product Dimensions:
5.2 x 0.8 x 8 inches
Shipping Weight: 10.4 ounces (View shipping rates and policies)
Average Customer Review:
4.8 out of 5 stars
193 customer reviews
Amazon Best Sellers Rank:
#13,127 in Books (See Top 100 in Books)
Wonderful, helpful! I have been researching for years about fibro and had put together my own theory of its etiology. Amazing to see the author has come to the same conclusion, although she explains it more thoroughly than I had yet become able to. Her recommendations are well worth doing. The ones I hadn't been doing have become part of my own care plan.
I was hesitant about this book, as I already have tons of info about FM floating around my head (so I didn't feel I needed an introduction to the topic). But not only is the Fibro Manual comprehensive and current, it provides a very trustworthy roadmap for all aspects of management (pain, sleep, exercise, energy, doctors, etc). I realized while reading it that my approach has been pretty scattershot for the last several years -- and that I was often slowing down my own progress because I didn't realize ways in which my experimentation was undermining my overall efforts. Liptan does a wonderful job of explaining how everything connects (as best we now know), so that we can effectively prioritize and organize our management strategies. Her section on sleep aids and supplements (with advice on how to combine them safely and effectively) is alone worth the price of the book. I've been following the manual pretty religiously for a couple of months now. Of course I'm not "cured," but I feel the most stable I've felt in years, not desperately trying new things every day. Highly recommended.
This is one of the best books available on treating fibromyalgia. A must read for every fibromyalgia patient and treatment provider. This book lives by my desk because I look things up in it constantly. It's required reading for my Fibromyalgia Coach training class.There are a few things in particular I love about this book:First, Dr. Liptan includes all of the little things that have made the biggest difference in my fibro healing. These are all things that took me years to discover on my own -- and you'll have them all right here!Second, there is a section at the end of each chapter that outlines the things you can do for yourself, as well as the things your doctor needs to help you with. This makes it a very effective book for you to use on your own.Third, there is a bullet point guide at the back of the book specifically for your doctor. It includes the research and studies that support her treatment recommendations. This means that our busy doctors can read the "cliff notes" version to know how to treat you.Many people have asked me how this differs from her first book, Figuring Out Fibromyalgia. I'm also often asked if they should buy The FibroManual if they've already read the first one. If you're wondering the same thing, here's your answer:Figuring Out Fibromyalgia is limited to what we knew about fibromyalgia at the time it was published (January 2011). After six years, we know a lot more. Studies have been done and drugs approved (or not approved!) that have changed our treatment strategies. While Figuring Out Fibromyalgia includes more of Dr. Liptan's personal fibromyalgia journey, The FibroManual was written with your doctor in mind. As I mentioned above, Dr. Liptan includes bullet points at the end of every chapter and a "cliff notes" section in the back for your doctor with all the research links and information he or she needs to treat your effectively.I highly recommending getting a copy of The FibroManual. It truly is a complete fibromyalgia treatment guide that is written for both you and your doctor.
I purchased this book for my wife "m". She initially borrowed it from our local library and after a few hours of reading this book she told me that she needed to own this book. She has been suffering from fibromyalgia and myofascial for years and did not know it until she saw a rheumatologist in 2017. Of course with most doctors they prescribe a muscle relaxant and/or anti-inflammatory pills and other pills to help with symptoms. This book has helped my wife so much because it addresses the symptoms and what you CAN do to feel better. She still sees a useless rheumatologist, but this book has given her much more insight on what is going on and why, than any of the 11 doctors that she saw in 2017. She would have fibro flare ups almost daily and the rx pills were not helping. Taking matters in her own hands and googling she stumbled across a blog that mentioned this book and borrowed it from the library because she got tired of buying fibro books only to be disappointed about the info that the books provided. She is at the gut repair stage and is feeling better already and its only been about 4 weeks. She has even purchased a jumpsport rebounder to exercise on. Up until now she was fatigued and in pain, so exercise was not on her agenda. Yes, she still has pain but its improving. This book is a manual and one thing you must do is get it. Then read and re-read it. Take notes from the book as you read it then google and research what you read. THANK YOU Dr. Ginerva Liptan for helping us understand what is going on and why. One more thing once you start to feel better, you need to exercise, my wife chose to get an enell sports bra because she has large breasts and use a rebounder (mini-trampoline, not the cheap kind that you find in stores) and she jumps on it daily for a few seconds, yes, I said seconds at a time until she builds up to minutes. Exercise was one thing that everyone keeps repeating. How do you exercise when you have fibro pain and tired and can't sleep??? Dr. Liptan gets it. She says you need to get deep sleep and repair your gut, and that's just the beginning. I hope the experience that my wife has had with this book will help other people as well. I'm getting my wife back. : ) Sorry for the long review, in the words of bobby womack, that's the way I feel about 'cha.
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